Wednesday, March 10, 2010

Wednesday whine-fest

What is the defintion of exhaused? According to google....
.Definitions of exhaustion on the Web:
extreme fatigue

debilitation: serious weakening and loss of energy

the act of exhausting something entirely

Fatigue (also called exhaustion, lethargy, languidness, languor, lassitude, and listlessness) is a state of awareness. It can describe a range of afflictions, varying from a general state of to a specific work-induced burning sensation within one's muscles. It can be both physical and mental. ...

The point of complete depletion, of the state of being used up; Supreme tiredness; having exhausted energy

exhausted - drained of energy or effectiveness; extremely tired; completely exhausted; "the day's shopping left her exhausted"; "he went to bed dog-tired ...

exhausted - depleted of energy, force, or strength; "impossible to grow tobacco on the exhausted soil"; "the exhausted food sources"; "exhausted oil wells"
K that sounds about right..
Living with what I suppose I have..although the Dr's don't really have answers or magic wands as one said...I guess it's to be expected that I am tired, fatigued, exhausted and sometimes whiny.. I am entitled sometimes, right?
Here's a brief definition of ONE of the things I have been dx'd with..
Ankylosing spondylitis is a form of chronic inflammation of the spine and the sacroiliac joints.
Chronic inflammation in these areas causes pain and stiffness in and around the spine. Ankylosing spondylitis is also a systemic disease, meaning it can affect other tissues throughout the body. Accordingly, it can cause inflammation in or injury to other joints away from the spine, as well as to other organs, such as the eyes, heart, lungs, and kidneys. Ankylosing spondylitis is considered one of the many rheumatic diseases because it can cause symptoms involving muscles and joints. Each individual tends to have their own unique pattern of presentation and activity of the illness.
 Dr. examination can demonstrate signs of inflammation and decreased range of motion of joints. This can be particularly apparent in the spine. Flexibility of the low back and/or neck can be decreased. There may be tenderness of the sacroiliac joints of the upper buttocks. The expansion of the chest with full breathing can be limited because of rigidity of the chest wall. Severely affected people can have a stooped posture. Further clues to the diagnosis are suggested by X-ray abnormalities of the spine and the presence of the blood test genetic marker, the HLA-B27 gene. 
 Fatigue is a common symptom associated with active inflammation. The treatment of ankylosing spondylitis involves the use of medications to reduce inflammation and/or suppress immunity to stop progression of the disease, physical therapy, and exercise. Medications decrease inflammation in the spine and other joints and organs. Physical therapy and exercise help improve posture, spine mobility, and lung capacity.
K so that wasn't so brief, but I did cut out a few pages of info lol..
So..what all this means, is that I like to inform my friends and family, that when I say I am tired, I really am exhausted to the point of pain. It is hard to explain how I feel, it is easy for others to see me as "normal" since, on the outside I am.
Yup..Im a whiner today..maybe it's cuz I'm
I have noticed, after dragging myself and my gym buddy to the gym after lunch, I do feel somewhat better. I feel looser, and less stiff.. So I am wondering if I should try a morning workout also. Maybe some yoga..but that would mean waking up even earlier! *sigh*
The teenager is being a teenager..constantly fighting with little sister, texting and calling friends alllll day..I don't remember being like that when I was that age.. nope..I was an angel! *giggles*
The youngest is on a slightly higher dose of her meds..she is coping well. She has been much better, and even got the chance to play with friends one day after school. I think that was so good for her. She needs to get out of the house more, but it is so hard not knowing when the next blowup will happen and hoping her friends or even their parents aren't in the line of fire. She is such a good kid, and has such a big heart, it is scary to think there is such a volcano underneath it!
We're getting by as best we can..And that's all a mom can hope for, right?

1 comment:

Candi said...

Baby Sis. I remember you as a teenager. You were really good....when compared to me. lol
Glad the gym is helping you, it is helping me a lot too. One weird thing I have noticed that helps with my RA is aromatherapy, of all things. I have my whole house smelling of vanilla and lavender, and when I and having a "bad joint day" I have an essential oil made mostly with lavender that I rub on my hands, knees, and feet. The smell helps me relax, and something in the lavender or one of the other oils helps the pain and swelling. Definitely works better (and smells better) than Aspercream! And, the house smells good. Bonus- lavender is a natural soother and helps the lil ones sleep too!